Download e-book for kindle: The Official Parent's Sourcebook on Williams Syndrome: A by Icon Health Publications

By Icon Health Publications

This sourcebook has been created for fogeys who've determined to make schooling and Internet-based learn an essential component of the remedy strategy. even though it provides details valuable to medical professionals, caregivers and different overall healthiness execs, it additionally tells mom and dad the place and the way to appear for info protecting nearly all subject matters on the topic of williams syndrome, from the necessities to the main complicated components of study. The identify of this publication comprises the observe legitimate. This displays the truth that the sourcebook attracts from public, educational, govt, and peer-reviewed examine. chosen readings from a variety of enterprises are reproduced to offer you the various most up-to-date reliable details on hand so far on williams syndrome. Following an introductory bankruptcy, the sourcebook is prepared into 3 components. half I: THE necessities; bankruptcy 1. The necessities on Williams Syndrome: guidance; bankruptcy 2. looking suggestions; bankruptcy three. medical Trials and Williams Syndrome; half II: extra assets AND complex fabric; bankruptcy four. experiences on Williams Syndrome; bankruptcy five. Books on Williams Syndrome; bankruptcy 6. Multimedia on Williams Syndrome; bankruptcy 7. Periodicals and information on Williams Syndrome; bankruptcy eight. surgeon instructions and Databases; bankruptcy nine. Dissertations on Williams Syndrome; half III. APPENDICES; Appendix A. studying Your kid's medicinal drugs; Appendix B. getting to know replacement medication; Appendix C. gaining knowledge of nutrients; Appendix D. discovering clinical Libraries; Appendix E. Your kid's Rights and assurance; on-line GLOSSARIES; WILLIAMS SYNDROME thesaurus; INDEX. comparable issues comprise: Beuren Syndrome, Early Hypercalcemia Syndrome with Elfin Facies, Elfin facies syndrome, Elfin Facies with Hypercalcemia, Fanconi style idiopathic childish hypercalcemia, Hypercalcemia-Supravalvar Aortic Stenosis, Williams-Beuren syndrome.

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Extra info for The Official Parent's Sourcebook on Williams Syndrome: A Revised and Updated Directory for the Internet Age

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Additional steps you can take to locate doctors include the following: · Check with the associations listed earlier in this chapter. org. This Web site is run by “Administrators in Medicine,” a group of state medical board directors. · The American Board of Medical Specialties can tell you if your child’s doctor is board certified. “Certified” means that the doctor has completed a training program in a specialty and has passed an exam, or “board,” to assess his or her knowledge, skills, and experience to provide quality patient care in that specialty.

You cannot request that your child receive the new treatment instead of the placebo or “sham” treatment. Often, you will not know until the study is over whether your child has been in the treatment group or the control group. This is called a “masked” study. In some trials, neither doctors nor patients know who is getting which treatment. This is called a “double masked” study. These types of trials help to ensure that the perceptions of the participants or doctors will not affect the study results.

Com/exec/obidos/ASIN/1901346293/icongroupinterna Vocabulary Builder The following vocabulary builder gives definitions of words used in this chapter that have not been defined in previous chapters: Genotype: The genetic constitution of the individual; the characterization of the genes. [NIH] Molecular: Of, pertaining to, or composed of molecules : a very small mass of matter. [EU] Phenotype: The outward appearance of the individual. It is the product of interactions between genes and between the genotype and the environment.

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